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My pregnancy with Jacob was completely normal. I was 22 years old when I had him, and his father was 36. I didn’t have any complications at all. He was born 3 days late and was a little jaundiced right after birth, but besides that he was 8 pounds 3 ounces of perfect baby boy.

He was hitting all his milestones right on target (sitting up, walking,  talking). He had a pretty big vocabulary for a 1 year old and I enjoyed taking him for walks and listen to him label things like bird, car, and cloud. Around that time his father and I split up. I took Jake with me and stayed at my parent’s house until I could find a place of my own. During my stay there I took Jake for his MMR vaccinations when he was 15 months old. A few days later he was in his own little world.

I know there is no evidence of vaccines and autism. I have no idea if it has anything to do with autism, I’m just telling you my story the way it happened.

My happy talkative little boy was gone. In his place was a boy who would just sit and stare. He stopped saying all his words. He stopped looking at me. He stopped giving me that beautiful smile. At times he was totally emotionless. At his 18 month check up I told his doctor what was going on, and we were referred to Early Intervention. They did wonderful with him. Those women had some serious patience because all Jake would do would scream while they tried to work with him. I watched with tears in my eyes behind a one-way mirror.

During this time I started a relationship with my boyfriend Ed. He’s been a huge support for both me and Jake. You can read more about him and all he has done for us here.

We took Jake to Penn State Children’s Hospital in Hershey where he got the diagnosis of autism. We pretty much already knew it, but it’s still a punch in the stomach to actually hear a doctor say it. When I got home that night I went right online to see what I could do for my son. I came across the GF/CF diet. I figured I’d give it a try.  I asked the doctor and she said “It wont do anything, but it can’t hurt anything either.”.

Again, some people have success with the diet and others do not. If you want to try it, ask your child’s doctor. I will go into more detail about the diet and our experience with it in another post.

Within a week, Jake was no longer waking up screaming in the middle of the night. His red ears and cheeks were gone. After a couple of months on the diet I heard Jake’s first word after almost a year of silence. “Toof” he said, while pointing to his teeth. I’ll never forget it. We were in the Walmart parking lot when it happened. He was on the diet for about a year when we started introducing gluten back in. He no longer got a reaction from it and then we added some milk based products.

He slowly started to say more words. He started going to school in an autistic support program that our school district has. We’ve been through ups and downs with him, but now he’s almost 11 years old and in 5th grade. We put off medication as long as possible, but it became increasingly hard for him to focus in school, so now he is on Vyvanse. He’s in mainstream classes with his TSS by his side.

I’ll be telling you more of our story in other posts during this month.

14 Responses to “Jacob’s story”

  • kriti:
    2

    OMG, he is beautiful! The exact same thing happened to my son at 3 years of age. He knew letters, numbers, and then he was suddenly in his own little world. I can’t pinpoint exactly the date but it was after he had a series of shots…makes you wonder.

  • What a heartbreaking and beautiful story! Jake is lucky to have a mommy like you.
    .-= Lindsay @ Kids Are Teachers´s last blog ..My First Giveaway =-.

  • Jenny:
    4

    What a wonderful mom you are. And en eye opening post. It makes me just sick to hear so many stories like this. They say that they haven’t linked it to shots, but my chiropractor would tell you otherwise. I read enough to know that my 3 year old and one year old will not be getting any more vaccines. And if they kick us out of the practice, so be it.

    Thank you for sharing this. Your son is blessed.
    .-= Jenny´s last blog ..Big Brother Loves… =-.

  • He is adorable! My son has fairly severe SPD and mild OCD and I’ve been wondering about going gluten free. Did you have him tested first or just try it? I need to check out a book at the library I think- I’ve read alot on it but still don’t quite understand. I know our family carries gluten sensitivities though so might help.
    Your son is so lucky to have an awesome mom like you!
    .-= Michelle´s last blog ..Writer’s Workshop: 10 Things Blogging Has Taught Me =-.

  • Matt:
    6

    Sounds very similar to our son’s story, except his regression started around 24 months. Glad to see he is doing so well. :up: .-= Matt´s last blog ..Routine Stubborness =-.

  • It sounds like he doing well. I am glad the diet helped.
    .-= JDaniel4′s Mom´s last blog ..Muffin Tin Muffin- Blue and Purple Foods =-.

  • Wanda:
    8

    In his picture your son looks very focused and emotionally “there.” Whatever you are doing seems to be working beautifully!

    The only person I know is an adult who has been managing his autism all his life. He is a very successful computer technician, a husband, and a father of four (no autism among the children). His primary challenges are the social ones, and he does what he can to handle those successfully, such as work from a home office and plan ahead when he is to attend a wedding or some such event. But then again, he plays guitar in coffee houses and is just great at it! He has relied on diet and exercise to see him through, and he is doing remarkably well. There was no such term as autism when he was a youngster, so he has had to rely on himself and his own trial and error process to come as far as he has.

    I have a feeling that between your strong advocacy and the strides medical science is making every day, your son will come through this just fine.

    • Janine:
      8.1

      Hi Wanda,

      That’s a great story about your friend! I hope one day to be a grandmother to Jacob’s children =) Thanks for sharing!

  • Debbie:
    9

    I know that doctors will not admit it, but I truly believe autism is from the shots. Why else would a normal baby go to being autistic over night. The pharmaceutical companies make way to much money on shots to close them down.

  • Margaret:
    10

    I know next to nothing about autism, it will be educational to continue to learn your story. I’m following from MBC GFC. I have a new address that I just mentioned over there, http://www.creativemadnessmama.com so please follow there. Thanks! I hope to get to know you soon. *grin*
    .-= Margaret´s last blog ..FIRST Chapter: Sworn to Protect by DiAnn Mills =-.

  • Jean:
    11

    Thank you so much for sharing. Our story is the complete opposite. J was different from the very beginning. He did not regress. Autism is so interesting and puzzling…
    .-= Jean´s last blog ..Thank you city of Manhattan =-.

  • Shelley:
    12

    He is so handsome! Thank you for sharing your son. You have done such an amazing job and he has made such wonderful progress!

    I had Adam tested at 2yo, and we were told that he had mild allergies to milk, soy, wheat and oats. We tried the GF/CF diet for 2 weeks. He lost weight..would not eat anything! He had major sensory problems with his mouth, therefore, he was and still is a very picky eater. The allergist said his allergies were so mild, and he had no outward signs of the allergies, that we didn’t have to do the diet. He said that he would probably outgrow them. (I do need to have his blood checked again…bleh!)

    Adam’s story is a little different. We kind of think he was born with Autism. No regression after shots, etc. He just never reached any of the milestones. He definitely had autistic ‘signs’ when he was a baby…I just didn’t know what Autism was back then. I assumed that all babies were different (he was very different than my two daughters). Actually, my 10yo daughter didn’t start speaking until she was 2.5 years old! But she did ‘babble’ and imitate, unlike Adam.

    Autism is definitely a puzzle. It’s very confusing at times….but we just keep working and working, hoping that he continues making progress.

    Keep up the good work, Mom :)

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